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Muscular dystrophy

Muscular dystrophy refers to a group of genetic conditions that causes muscles to weaken over time. Muscular dystrophy is a degenerate condition, which means it gets worse the older the baby or child with muscular dystrophy gets. A baby or child with muscular dystrophy is more likely to have feeding difficulties due to the degenerative and disabling nature of the disease.

If your baby or child has muscular dystrophy and feeding difficulties our specialist dietitians can help. To book an assessment please contact us.

What are the symptoms of muscular dystrophy and feeding difficulties?

In babies and children with muscular dystrophy there can be a range of feeding and nutritional problems and they can vary or worsen over time. Symptoms of muscular dystrophy and feeding difficulties are:

If your baby or child with muscular dystrophy has one or more of the symptoms above they could have feeding difficulties associated with their diagnosis of muscular dystrophy. We can treat your baby or child’s feeding difficulties with a diagnosis of muscular dystrophy or not. Sometimes your baby or child may be growing normally and not yet exerting signs of malnutrition so you can not get the help they need. If your child has already been diagnosed with muscular dystrophy, or they have not and you think they have a feeding difficulty, our dietitian led multidisciplinary team can help. To talk to our experienced multidisciplinary team please contact us.

Salahudeen with dad and Jade

Why do babies and children with muscular dystrophy have problems with feeding?

Muscular dystrophy is a progressive neurological disorder which affects the muscles, motor skills and movement of the swallow and face which are required for feeding. Babies and children with muscular dystrophy have a multifactorial range of disabilities, therefore we offer a multidisciplinary team of experts to help assess, diagnose and treat your baby or child’s feeding difficulty alongside their diagnosis of muscular dystrophy. To see if our team can help your baby or child please contact us.

What treatment can you provide for babies and children with feeding concerns related to muscular dystrophy?

A baby or child with muscular dystrophy needs regular monitoring of their nutritional status, growth and development to enable them to reach their full potential at every stage of their disease. Our feeding team includes speech and language therapists, physiotherapists, occupational therapists and dietitians to ensure they have the safe swallow and ability to feed appropriately. We will work with you and your baby or child with muscular dystrophy to provide an individualised treatment plan to overcome their feeding difficulties. To book an assessment please contact us.

Make a referral

To refer a child to our services this can be done online, or by calling 0161 820 8262 or emailing office@kids feedingteam.co.uk

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We are having an event on the 1st December! As hosted by our paediatric dietitian, she will educate on how to tackle fussy eating (and prevent it!) whilst ensuring your child is getting enough energy and nutrients. Link below to buy two tickets for £10. https://www. eventbrite.co.uk/e/from-fussy-e ater-to-foodie-tickets-50061953651?ref=estw   … pic.twitter.com/ra3MWKIxdP

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